Madeline GI issue

Well, for all who know about Maddie today was her upper GI. They found reflux even though she is on two different kind of reflux medications. However, because she isn't a "spitter' it is known as silent reflux, so no structual issues THANK GOD!!! Mike got me in to see a GI doctor also, so he wants to do a Endoscopy and a PH probe, along with the sweat test for CF. His concern mainly because she only takes 16 ounces a day on a good day and it is like force feeding her to get her to take that much, that she has developed behavioral issues too feeding to deal with the reflux since the medications aren't helping. So we are probably going to start new medications and add fortifier to her milk to increase the calories in it. He says if she keeps on going this way, she already has not gained weight and has crossed wt percentages but it will eventually start effecting her length and her head circumfrence too. So what do we do? Ummmmm, we are being admitted tomorrow to All Children's Hopsital tomorrow for all these tests and of course we have to stay overnight and possibly more days. They might be putting a NG tube down her to get her fed to deal with the reflux so we can deal with the "behavioral issues" about feeding. When I know more I will inform everyone.

Leslie